We met with the Pallative care Doctor on Tues and had a fantastic 2 hr conversation regarding the next steps in Dad's journey. She listend very attentively and showed more compassion that I even knew was possible in a human being! These folks are truly angels...Pallative care/Hospice is the care given to terminal patients that increases their dignity, helps the family, provides the in house care, and support we need to give Dad the best days he can ever get...we are really blessed to have this team of folks working for us.
Anyway, point being, this is it for Dad's strength...unforunately his strength will never return and in fact will continue to decrease with every passing day. Our goal now isn't to get it back, it's to conserve what strength he does have to use at the proper time...aka efficently.
So what does this mean for everyone:
1. no large groups of people at the house at any one time (please cooridnate with either Sherry or myself to ensure that this doesn't occur.
2. when you do visit, this is your time to offer the help and assistance that we all want to provide. Offering to get things and encourage him to just enjoy your company is something that Dad is being coached in by the physical therapist and nurses.
3. He'll start to get more and more sleepy and the times between rests (being awake) shorter and shorter. You may come to visit and he'll be sleeping, plan accordingly and please don't get upset. we are on his schedule now...so again please plan accordingly
Not fun to talk about, not fun to say, but needs to be said kind of stuff. I know everyone reading this message totally understands but I guess I just needed to put it out there.
Our Priorities are:
1. Brain MRI
2. Deal with the severe constipation
3. Deal with and solve his lack of appetite
4. Deal with his strength
5. Determine where all the blood he is getting has gone
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